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Siblings Tribute – Jamie and Kristy

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Brynn and Jamie both sent me their responses to the entry on the same night. It was quite astonishing how many similarities there were between their stories. Although the response has been overwhelming in regards to the tributes, it saddens me to know how many people can truly relate to this heartbreak. Either by enduring it themselves or watching someone close to them endure it. It’s painful in all realms, each in their own way. But at the end of the day, our hope is that those reading this have a greater sense of hope in knowing they aren’t alone in their grief, their support or their fight.

*Disclaimer: A box is tissues is recommended – you’ve been warned! 😉

You and your sister (names, background, ages)- who were you both pre-diagnosis?

My name is Jamie (Puetz) Groebner, I was 29 years old when my sister Kristy Puetz was diagnosed with Ovarian Cancer at the age of 37, she fought a miraculous 9 years before passing away by my side on February 21st, 2014 at 4:15 am at the age of 46.

Who were we??  Very stubborn red heads, always looking for a good time!!                  Growing up with 8 years between us, we fought about everything… she was in charge of me a lot since my parents both worked outside the home.  When she was mad at me she would often pinch my cheeks together with her thumb and pointer finger.  I hated it. I usually ran from her, down the street to John Deere where my dad worked as a parts manager, crying my eyes out with sore cheeks. I knew he would let me stay with him until he was off.

As we grew older, we found out fairly early on in our friendship that we did a lot of the same things regardless of the fact that we lived miles apart.  We liked the same music, we sang with emotion in the car, we were passionate about our friends and their lives.  We were social butterflies at heart – we loved to plan a party, loved to be the life of one, and couldn’t wait to hit a happy hour somewhere! And it wasn’t for the fact of getting drunk, it was because being with our friends and laughing was so uplifting and we loved that! We loved making memories with our family & friends.

What battles (disease, metastasis, how many times in remission/relapse) did she endure and for how long?

I worked in the Baldwin Building at Mayo Clinic Rochester at the time of her diagnosis. My supervisor at the time seemed so cold hearted by not allowing me to go to Kristy’s appointments. That day when my pager went off, I picked up my phone and instantly could hear the gasps in Kristy’s voice when she paged me, through crying gasps she breathed the words cancer; and I immediately went into panic mode, I left work and ran down to the second floor to the room she was in with our family physician. I told no one where I was going because at that time none of it mattered, I just needed to be with her. The search began the next day to find the primary tumor. It felt like time stopped after days of invasive tests and biopsies, she was diagnosed with Stage 4, Grade 3, Epithelial Ovarian Cancer. The tumor had grown the size of a cantaloupe on her ovary in her abdomen. Our family hit rock bottom once we were given the grim news. Surgery was planned for March 10th, 2005.

I think back to the morning of surgery. At the time, my husband Ryan and I were living in Mazeppa.  Kristy and I talked on the phone most of that evening, as she packed.  I met my parents and her at the hospital the next morning, and immediately started taking pictures of her because at that time, her Oncologist told her she had maybe a year, if not less to live.  I started documenting everything that day. The updates, the calls, the pacing, I remember that feeling of my stomach turning inside out, sort of the way it feels writing this, complete torture. The worst part – I had to attend a mandatory meeting with HR at work or I risked losing my job. In the middle of that meeting I started crying, I couldn’t believe I was sitting there and not with my family. I said something along the lines of ‘while all of you are worried about who’s doing what at work, my sister is in surgery’, (I may have said a few other not so appropriate words as well) but I was so upset. I walked out, ran back to Methodist hospital, thinking for sure I was going to lose my job.

I just made it back to her room when the resident surgeon came up to talk to us. They opened Kristy up from sternum to pelvic bone and searched through her entire cavity to make sure they got as much cancer as possible. My first reaction was to hug her, that’s when the tears fell. My parents and brothers were there, each of them walked away engulfed with their own emotion.  We heard the elevator chime… I can still see her rolling down the hall at 6pm. She was so swollen, the largest I’ve ever seen her, all of it fluid. We were warned she would look like this, however it was so hard to see her look so different, (in the operating room they inverted the bed to help with the positioning of her intestine so they could work on detecting all of the cancer) little did we know this would be the new norm of her many hair and body changes.

I started talking to her right away, telling her I loved her, and that they got it all… I’ll never forget her eye opening just a little and tears fell… she heard me loud and clear. That night I slept in a chair, not a recliner although I wished for one, it was a wooden desk chair, but I kept telling myself, the pain I feel from getting a bad night’s sleep is nothing compared to what she is going through.

The next day I asked for a bigger room and by the third day we upgraded to a larger room, and I finally got a sofa sleeper. We watched so many movies, when it was nap time she always told me to put in Legal Eagles with Robert Redford in it…. that usually had us both sleeping in minutes! I never left the hospital during her stay. I helped her shower which may have been a true test of sisterhood. 😉 She had 3 drains coming out of her abdomen and it took her a while to be able to stand up without excruciating pain. Until she had the drains removed and enough strength to stand on her own I would get part way in the shower with her to wash her while she held on to her drains, shaking in pain, crying for me to hurry. My tears silently falling at the situation in front of us.

She even had me make a photo guest book of all her visitors, taking each person’s picture as they stopped by or as flowers and gifts were delivered. I had them sign a get well note on each page where their picture would be, and we put it together after she was dismissed and before she started chemo. Through it all, there were lots of tears, and lots of laughs too. She made the best of it, and never let people think it was as hard as it really was.

Kristy started chemo 6 weeks later, in April of 2005. From there it was recurrence in 2009 revealed through a liver biopsy, followed by a different regimen of chemo. In January of 2011 it was discovered that she had mets to liver and in the right lower quadrant. That round of chemo had to be discontinued due to severe dermatitis. Then it was hospitalization for a small bowel obstruction, which was the first of a few to follow. By November of 2011, the Ovarian cancer showed up again in the CT of her abdomen and pelvis. More chemo, more hospitalization, more operations, more nausea, more struggles, more tears, more heartache, more fighting. This roller coaster continues on and off with multiple hospital admissions until there were no more options.

Explain what impact this had on you personally and how it changed both of your lives/perspectives, good and bad.

I lost my best friend. The first half of our lives we argued and acted as if we hated one another…actually I drove her crazy, yet all I could think of was being just like her. When it changed, we had a connection like I’ve never had with any friend. Only sisters know what I mean when I say that, and I don’t mean to say it in a bad way because I have some truly great friends who I care about as if they were my sisters.  But it does not compare to the bond I had with Kristy, one that was built long ago. The bond that holds our past, our childhood, our family trips, our countless phone calls, and an understanding of one another, our bond, was solid as any iron or stone. Unbreakable.

The treasures are the countless strangers, physicians and nurses who became our friends and the connections she made at the chemo, which is more like a gas station really. The countless beds and chairs stationed in one area where everyone checks in to get filled up on poison. Kristy though, she changed the tempo on Gonda 10… if you ever visited her there, you always had an idea of what room was hers. It was always the loudest!  And she didn’t like to sit in the chairs much unless she was only going to be there for an hour or two. In and out she’d say, I want to hit happy hour at Jonnys! And if her cycles ran longer than that she usually asked for a room with a bed, because the pre-meds would make her tired. After her nap you would usually find her up walking the halls with her IV pole checking on others she had met the week before. Sharing a joke, there was always laughter  or, her calling maintenance to come fix something she seen was wrong. Everyone loved her. She brought social hour to chemo and she made it better by just being there.  She yearned for hope from others yet she gained so much more.

Genetics is a huge factor. After three tries we finally found out why she got it. The Gene mutation BRCA1. If my sister wasn’t so aggressive in her fight and in her curiosity of ‘why me’ … we wouldn’t know.  And with that knowledge she has saved me by making me promise her I would get tested. To think all the while I was trying to save her, in the end she saves me. Wow – that is love!

What did this consist of for you personally – to recall being a cheerleader on the sidelines, observing, but being unable to save them? (Ultimately the trauma of being the survivor).

From day one, I researched, I did everything I could have done to save her. I called all over the world looking for the right clinical trial. Each one would get shot down by different doctors due to a certain chemo she had taken, or the numbness in her feet and hands, the length of her disease, the stage, where it had metastasized. Each time I thought I found one that might work I would send it to a team of doctors I worked with who were my backbone of soldiers with their medical education. They would compare her to the study and we would all determine what the outcome would be.  I, of course would not take no for an answer so I would enroll her, only to find out later she wasn’t a match. I needed concrete information to prove me just what they had told me all along. Her cancer sucked the energy out of both of us. Watching someone I care so deeply get knocked back down after enduring so much. Time and time again she inspired people by keeping that smile on her face, even when deep down, she was miserable.

The illness itself is exhausting. Her only chance was the poison that was pumped into her body, and she had to find the strength and courage to stay alive through fatigue, vomiting, pain and sadness. She just did what any of us would do. Fight like hell to stay alive. Because that is all she wanted, was to live, love and be happy. The worst part, the suffering in the end… let’s be honest – it is what it is right….suffering? The cancer starved my sister. Suffering. It produced road blocks in her gut and her gut stopped working. Suffering. She could no longer eat or absorb nutrients. Suffering. She had a peg tube placed in her abdomen to help relieve the pressure so she didn’t continue to vomit multiple times a day. Suffering.

Do you feel you’re meant to do something differently with your life because of her death? And if so, what is your hope/goal? How do you want her to live on? 

I was in nursing school prior to both my mom and sisters’ diagnosis. I was released on a compassion leave from the program when my mom was diagnosed with terminal small cell lung cancer on March 8th, 2013.  I returned in the spring after her death, however my return date was only a few days after my sister was discharged home on hospice.  I wasn’t able to finish then either and was given my second check mark, meaning I wasn’t allowed to return. If I were to ever be a nurse I needed to start the program over. I felt as though I failed my family, my goals, and it was so stressful, but my heart was broken. School didn’t matter as much as my mom and sister – nothing does when you’re in that situation. Thankfully, I learned enough in school to know how to care for them and understand what was going on with their bodies, and to feel confident enough to be able to follow their wishes to die at home. For years my role was to help Kristy fight her cancer, then I was helping my mom too.

I’ve definitely changed. I was by her side to help her, guide her, and cheer her on, lift her up when she was at her worst, give her hope, and coach her through. When she died my caregiver role was over. I was lost… numb. The pain was like a dagger being shot into my heart and twisted a hundred times.  Over time, when I thought that pain would subside… I would be forced to be reminded it hadn’t… it’s only gotten more bearable. She was such a good person, sister, daughter, and an amazing aunt to my kids, and nephews, and Godmother to my son. For months I felt like I was walking around in a fog. Then I had genetic testing done only to find I was BRCA1 positive too. One blow after another, the hits just kept on coming. Surgery, menopause, patches, depression, wow…

Each day I think about her, and I think about what little I have went through and how awful I feel one day and how great I feel the next. I can’t even fathom what Kristy went through but I will say, I have learned how she put on her mask each day and made the best of it. I return to the promises I made to her that I would stay involved in her fight. I want to continue to help spread awareness to others about this horrible disease.  I hope as time goes on I can actually stand in front of an audience and not cry while I talk about her because I miss her so much. My goal is to continue to be an advocate for others by staying involved in the organizations that she was passionate about.

Kristy was my best friend, my sister, my rock. I thank God each day that he chose us to be sisters…

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In closing I want to share a wonderful note sent to her from a physician friend of ours: it’s pretty powerful so be ready… 

First of all, please accept my condolences for your loss.  It has been a terrible year for the Puetz family.  It just a year ago when Kristy’s mother was diagnosed with cancer and died within only a few months.  Kristy had a different course, living 10 years with cancer but, in the end, it also took her from us. We are here today to mourn the death of Kristy but also to commemorate her life.

I met her through Jamie around the time of Kristy’s cancer diagnosis and over the years have had the privilege of being her friend. We talked about many things but more than any subject was about how cancer affected her life. She was treated initially with the hope of cure but when the cancer came back the first time she realized she would never be cured. Being told one has cancer is an enormous shock because it is our expectation that our bodies will keep on working. When young, we don’t even think about our health.  We have injuries, infections, and so on but we always assume it will be ok and we will recover. Being told one has cancer changes this forever because the body failed us in a way it was never supposed to. Even when cancer is treated successfully, we are never the same.

Kristy handled her cancer better than anyone I have seen. She seemed to always look at the better side of life and, although she had her down days, she went on with the expectation she would be well.  Some people put their life on hold thinking they will resume it when the cancer is cured. They forget to live when they should be celebrating every day they have. Kristy did this; she had an illness but she was well.

I ask my patients if they have a spiritual part of their lives. What gives their life meaning? For some it is their faith but for others it is family, work, health, hobbies, volunteerism, pets and so on.  Each person has a different answer, but the basic question is “Why do I get out of bed each day?”  Because we “have to” is not a good reason.  We get out of bed to do something, see someone, accomplish something; we look forward to the day.  When health and other life changes occur, what we have relied on to give us meaning may no longer be possible. This may be a crisis because these things serve as our energy supplies and are the reasons should want to get better. The ability to find new reasons when the old are no longer possible is resilience. Kristy was amazingly resilient and why she is an inspiration to many. She found new reasons to live as long as her body would allow.

Funerals are for the living. We honor the dead by coming together to mourn our loss but also to celebrate their lives, remember what they mean to us and to tell their stories. Funerals should also remind us that we too are mortal and someday people will gather to remember us. We all should live our lives with this in mind in all our dealings with others, in our coming and going, in how we behave, and determining what will our legacy will be? We need to live mindfully which means being mentally present each day. Some people spend much of their time thinking about the past with regret or anger. Some spend all their time thinking about the future worried about what will happen and our inability to control it. We don’t, however, spend much time thinking about the present, yet it is the only thing we have.  I think this is best said by Jesus in the Sermon on the Mount in Matthew 6 25-34.

25 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more important than food, and the body more important than clothes? 26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Who of you by worrying can add a single hour to his life ? 28 “And why do you worry about clothes? See how the lilies of the field grow. They do not labor or spin. 29 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you, O you of little faith? 31 So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 32 For the pagans run after all these things, and your heavenly Father knows that you need them. 33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”

We also need to live our life remembering it is not our own. Our life is a gift of God and we need to be ever mindful of Him.  We should live our life seeking Him and his righteousness because some day we will answer to Him about what we did with our life.   

I am sorry I cannot be there with you today but my thoughts and prayers are with you in this time of loss.

Larry Bergstrom

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This is a speech that Kristy had written for the Corn on the Cob Day Pageant.

This is a shortened and modified version to bring out some of the humor that Kristy brought forth in her every day life. While highlighting some of her own strength and bravery – that she worked so hard to bring forth during her own trials and tribulations. I have no doubt it was God’s will to help her help others during their journey, along with her mindset and attitude – is what brought her far beyond that original grim diagnosis of less then a year to live. To be the light through the dark, the humor through the pain and the rock through the unsteady waves.

“I always thought when I lost my hair I would be devastated.  Well that wasn’t so bad….the thing I missed most about losing my hair was losing my eye lashes.  I just felt naked without them….the best part was I didn’t have to shave my legs and my skin was so soft! I know there really isn’t any “best” part about cancer but if I had to pick one that would be it!!

Cancer is scary, it’s a scary word to anyone and living with it isn’t easy, but I tell myself that I am not going to let this cancer change me or anything I liked to do.  IT WAS NOT GOING TO CONTROL MY LIFE!

 I was told that my life would be like riding on a roller coaster.  The cancer would be active then dormant, I’ll go on a break and so on and so forth.

Cancer is devastating………………………..to everyone touched by it.

I have learned a lot throughout this journey.  There have been a lot of tears but there has also been a lot of laughter.  I’ve met so many people, and shared my story to others who get diagnosed so they know what to expect… or what to try that has worked for me – even though each case is different.  And if you know me, or follow my caring bridge page, weird things tend to happen to me and all you can do……….. is just laugh! Because I try to live my life to the fullest each day, and I try not to let this disease or anything else bring me down.

The theme for you is “home of the brave’ … and each of us is brave in our own way, my bravery comes from deep inside myself knowing I’m not giving up…..knowing I have an enormous support system in my family and friends.

For the girls sitting up here tonight…. Courage and bravery are not just about facing risk, but also, afterward, about going back to the people you love, your community and sharing your experience, and encourage them to be strong.”

Kristy

*If this resonated with you, feel free to share on Social Media – not only to raise awareness but to bring hope to any who may be struggling*

Blurred Lines

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Blurred lines – a.k.a. The Fog – Part 2. Only this time ‘the fog’ was engrossed with anger instead of sadness. It was an instantaneous switch and one that overflowed into every facet of my life, one that overtook me for years to follow. I remember almost everything verbatim, and yet the days blurred together into weeks, and then months. Expressing how enraged and ultimately, consumed by the hurt I was – seems beyond words. It was hard to express the hurt because that meant I was affected by it, and I didn’t want to be made an ass of anymore then I already had been. Beyond the shock of it came the hate – that’s what drove me more then anything. I never knew the depths of sadness and depression until Josie, and I never knew the depths of hatred and anger until this. The way my blood boils just recalling the details – reminds me of how real it was.

Sarcasm became my defense mechanism, whenever I’d get nervous or he’d ‘back me in a corner’ (not literally) I’d start to laugh because I felt as if I couldn’t defend myself, and sometimes it just seemed so asinine to me that I didn’t have a comeback aside from laughing. That would only fuel the fire to another level. It was a guaranteed damned if I did, damned if I didn’t scenario, no matter what the conflict was.

When he walked down the stairs that night, the only thing I could do without cracking him was using my go-to defense mechanism by asking if she was a good fuck. Then it was defense mode, with the normal comebacks of – what was I talking about, he’s done with me, this is bullshit – blah blah. I asked a few more times with no response before I stormed out of the house, with his phone, no shoes and half dressed! lol I think I was still half in and out of my body at that time, knowing, but not knowing what I was going to do next – ready to totally loose control and yet there was a part of me that kept thinking, be careful – there’s kids involved. I flew into their house about 9:30, she must have had a warning as she was sitting at the top of the stairs – unsure of what to do. From there, we ended up outside, where I asked – well, more like demanded and yelled questions that consisted of non-stop swear words! For whatever I reason, at one point I said ‘you’re pregnant aren’t you?’ She couldn’t give a confident no, and kept saying I needed to talk to him. I told her she was crazy for thinking he’d tell me anything, he was never going to own this or her. And I was right. I knew him like the back of my hand in every aspect and I knew how he was going to play it out. As I left, I was shaking so bad I don’t even remember the drive to my parents. I just remember calling them and not being able to breath because once the tears started, they were unstoppable – until the waves of anger flowed again!

My friend, Emily, had met me at my parents, I needed smokes before the gas station closed, so we went to get some. My mom had said to her before we left ‘don’t let her do anything except get smokes, and come right back here.’ I had no intention of ‘chasing her down’ – but let’s just the say, the stars literally aligned. As we were pulling out of the gas station, she drove by. Poor Emily – I kept screaming at her to catch up to her. Once she pulled over, I went to jump in the passenger side and she started pulling ahead, I was half in and out of the car, door wide open! I vividly remember going to swing with a closed fist and right before I made contact I remember thinking ‘don’t do damage, she’ll call the cops’. It was exactly like that, as if someone said it to me. I opened my fist and started hitting, as I looked up I thought we were going to hit a parked car so I got out, still screaming of course! Emily was pregnant and I remember looking at the terror on her face, like WTF just happened, but I didn’t care, I was just impressed that’s all I did to her! The next morning consisted of me showing up and telling him he had 2 hours to pack everything he owned before a moving crew of my own showed up. Needless to say, he did a pretty good job, on short notice. 😉 I took a week off work and the fun of the legalities had begun!

I found out she was pregnant within a couple of weeks which just added to the damage that I swore couldn’t have gotten any worse, but once again did! Even though there was no denying it, he wouldn’t admit to it, he couldn’t bring himself to say the words. Where as she had no shame, in fact she thrived off it. The next year or 2 was full of DRAMA, oh my gawd – it never stopped! Those months consisted of assault charges, blackmail threats, another child being born, bar bound nights followed by hungover days, minimal sleep, unable to be in a functional relationship because I didn’t know how, trying to hold my own while being scared sh*tless that his empty threats might not be empty and I’d lose my daughter, nasty things said on both of our parts, anger, tension and hatred. I coped in any way possible, smoking, booze, bashing, hating, counseling, workbooks, a social calendar as full as I could pack it and ultimately running, running from the pain while simultaneously being engulfed by nothing but . The thought of another loss of any kind put me into pure fight or flight mode. The picture in my head is getting beat to a bloody pulp and just as I’d start to get back up, I’d take another blow to the gut, followed by another one to the head and back down I’d go. That’s what it felt like, I felt like I’d make progress and then more stuff would arise. It was as if catching my breath from one kick to the next was literally impossible.

Crazy was an understatement of what those 1st few years consisted of. I became obsessed by it, unable to move beyond it, because I honestly didn’t know how. It drove me insane! I can’t explain what it’s like to know someone hurt you and everyone around you so bad, but the only thing you have is hearsay. Never having any type of answers, closure, apologies or sympathy – consumed me. The racing thoughts haunted me – how it started, when it started, where it happened, how many times it happened, what was true about any of my relationship with him or friendship with her, what would this mean for the kids, what happens from here – how can this be my fucking life?! This blurred fog all over again, trying to navigate through blindly. Hearing the stories and the hearsay and to some degree, actually wanting to know it, because it kept my fire fueled with rage and hate, ensuring he’d stay away and perhaps to some degree, me being able to play the victim this time. Like there – for all the times you made me look like the bad guy, acting like you did no wrong and I ‘wrongly’ accused you – you just tied your own noose and I’m glad people, even your best friends, finally see you for what you truly are. Did it make me a better for thinking and acting like that? No. It provided temporary satisfaction that I needed in order to cope, in order to literally make it one day at a time – because I was so scared – scared of him, scared of what was to come, scared that this nightmare, on top of the last one that I barely recouped from – was never going to end – or even worse – it’d repeat itself.

This seriously sounds like a ghetto ass Jerry Springer brawl – I’m well aware that this entire situation does – in fact we joke that we missed out on making bank by not going on the show! 😉 pahaaaa

With toxicity comes more toxins – they fuel each other after awhile. There are certain points, despite if there was a ‘final deciding factor’ that you can’t turn back, sometimes the only way to free yourself and each other from a tarnished relationship is to simply let go. And realistically, it doesn’t matter how we got there, or who did what – we were there long before this and we held on long after we should have, causing damage not only to ourselves and each other, but also our daughter. Either way, it needed to end – and this was the shit show of fireworks that guaranteed that!

Siblings Tribute – Brynn & Jaime

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There isn’t anyone that doesn’t know of someone that has battled a disease at some point in their life. Whether it be cancer, mental illness, eating disorders, cardiovascular disease, Alzheimer’s, alcoholism, or addiction – to some degree, disease is disease. Some have triumphed over their struggles, while others fought the battle until the end, only to lose the war.

Although we lost our siblings to different diseases, we still watched them endure hardships while fighting against something that, in the end, was stronger then them. We, as family, were forced to sit on the sidelines, unable to make their physical, emotional or mental pain cease. From various forms of chemo, radiation or surgical treatments to different anti-anxiety and anti-depressant medications- they were forced to put their mind, body and soul through some excruciating pain just to be able to add another day to the calendar.

While we all know of these people, we don’t really, truly know these people. We’ve all heard of stories pertaining to disease and death, however, it’s rare that we hear or see what happens behind the scenes. The lasting impact it has on both the patient and the family and the roller coaster of emotions that take place along the way. From the fight to the triumphs and back to defeat, from what seems like never ending decision making, just to hope it was the ‘right’ one, just to doubt it and yet be forced to trust it all at once. From the overwhelming support of those around you, only to feel so alone in the crowd of supporters. From the distress on so many levels, only to hope it’s worth every ounce of energy put forth by everyone. From the tears to the triumphs, from overwhelming sadness to finding laughter in the little moments, the heartache to the joys of the smallest things you never noticed before, from the heaviest of guilt weighing on us down to trying to see the bigger picture through the diluted veil. From watching them in pain in every realm, to one day being forced to feel much of that same pain. This is a journey that so many – too many – experience, but one that often times doesn’t get brought up in the rawness in which is truth for many. And I want to bring forth that rawness, that truth and the awareness behind it.

I feel truly honored to be able to share this ‘Siblings Tribute’ with 3 other strong, brave, compassionate and determined souls to bring forth both their siblings stories, as well as their own. Our hope is that this can offer a sense of peace for those who are struggling in any way – to know that you aren’t alone on this journey, whether you’re the one who’s in the ring for another round to fight, or the cheerleader on the sidelines – your story matters! This is Part 1 of a few entries and I am truly so grateful they agreed to do this with me! Although these entries were excruciating to write – I’m excited to share both of their stories, as well as their sisters battle against a disease we’re all well aware and hear far too much about – cancer.

*Disclaimer: a box of tissues is recommended – you’ve been warned 😉

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“Sisters from the start, friends forever from the heart.”

You and your sister (names, background, ages)- who were you both pre-diagnosis?

My name is Brynn Ashley Soderlind. I was 31 when my sister Jaime Teresa Gartner was diagnosed with breast cancer on October 14, 2011. Jaime was only 32 years old. I was 8 months pregnant with my first child as I sat in the waiting room of the doctors office. My three year old nephew, Jaime’s son Jameson, sat on my lap on a blue upholstered bench. He was such a patient child. He held my hand and we sat there mostly in silence. It seemed like years. We waited and waited and waited. Finally, three hours later, Jaime came down the dark grey hallway. Her dark brown long hair framed her beautiful face like a picture. I remember her brief eye contact with me and then her eyes quickly fixed on her son. Tears were pouring down her face as she opened her arms to meet his little body. He fell into her with relief. She looked to me and smiled as she wiped her tears quickly from her cheeks and shook her head “no”. I knew right then that the massive lump in my sisters breast wasn’t a cyst or an enlarged lymph node. My throat felt tight as I swallowed hard. My sister had cancer.

We grew up with a strong sense of self. We lived out in the country on a hobby farm with our loving parents and grandparents, some goats, chickens, pigs, dogs, rabbits and a blind cow. We had great company each day with our siblings- Ericka, Ian and Seth- and the neighborhood kids our mom babysat. We loved to hike on the land and explore the 132 acre woods that we lived on and absorb all that nature provided to us. Jaime and I loved to take our Red Ryder BB guns out and shoot targets that Ian would set up for us. Life was easy. Life was so good. We loved to go to Whitewater State Park and as teens we would spend most of our summer hiking and swimming. We also loved to travel and took several road trips together and with friends. We did almost everything together. Where there was Jaime, there was likely Brynn.

We would end up moving to Colorado together in 1999. We loved the mountains. We loved the experience but eventually we ended up back in Minnesota together.

Almost a year before her cancer diagnosis, Jaime and I were in Esthetician school together. Jaime and Jameson lived with my husband Adam and I in our condo. Jaime and I had a long history of sames. We had the same jobs, wore the same clothes, loved the same foods, had the same friends, lived in the same cities, read the same books, listened to the same music. Her and I shared a bedroom, secrets, underwear, makeup, cars, lunch money, dreams, aspirations, germs but mostly, we shared genetics. I was encouraged to have genetic testing done shortly after my 33 year old sister had a bilateral mastectomy. I knew that if my sister had breast cancer at 32 years old, I had a pretty good chance of getting it too. When I got the genetic counseling and testing, my daughter was a baby and still breastfeeding. I remember the fear surrounding a positive genetic mutation. What if I too shared the BRCA2 mutation? I knew for me, it would mean a mastectomy and possibly a hysterectomy. That meant no more children. I was ok with that as long as I had an upper hand on controlling the disease.

I had a strong feeling that I didn’t have the mutation. I soon learned that Jaime had the same feeling. Sure enough, I tested negative for the BRCA2 mutation. I cried so hard when I heard the positive news; half of me was relieved and half of me felt guilty. I know it may seem strange, but it was like we had always shared everything and now we didn’t. And I was happy and devastated all at the same time. You see that’s the tricky part about disease and being a caretaker to someone you love so much. The cancer may have taken over my sister’s body, but it also consumed me, differently, but still the same. It completely changed everything.

I thought about cancer all day long. I thought about ways to help heal. I threw myself into research and tried to educate myself as best as I could. I attended every appointment. I quit my job to care for her full time. Her cancer became my cancer. Her life sort of became my responsibility. I’d lie awake at night running through all of the “to do’s” Did she take all of her meds? Did she eat enough? Were all of her appointments scheduled? Did we write down all of our questions? I learned as much as I could about her tumors on my own time. When they told her that her tumors were ERPR positive, HER2 negative, I researched. When they told her that she needed  radioactive Theraspheres implanted into her liver, I researched. When they said there was nothing left to try, I researched. I always wanted to find a way to save my sister’s life. I wanted her dream of becoming a grandmother to come to fruition. I wanted to see her pain-free and dancing in the woods at night like we used to do when we were young. I wanted to travel again, hike, shop, sing, learn to knit and play guitar with her. She always wanted us to take knitting classes and guitar classes together, but I guess we never made the time. I wish we would have figured out how to make it work. Especially guitar lessons. We both loved singing and music so much. I imagine how therapeutic it would have been to be able to play guitar and sing together during her 4.5 year fight against cancer. We both had our own guitar and knitting needles, but never learned. Now, I am ready to take guitar lessons. I will learn to knit this winter. The thing I’ve learned is that life doesn’t wait for us. We have to take advantage of the time we have- right now- today. If there is something you want to learn or experience, go for it. Set goals! Chase dreams! Jaime’s goal was to make it to Mother’s Day. My goal is to make sure that women aren’t dismissed when they find a lump in their breast, at any age. Jaime was dismissed by 3 different doctors before the fourth ordered a mammogram. 3 different doctors! None of them thought she had cancer because she was young and because they told her cancer didn’t hurt, so her lump must have been a cyst or something. It will take me a lifetime to get over the dismissal she received from those individuals. If a 31 year old woman complains of discomfort and has a sizable lump, it should be taken seriously. Mammograms save lives. Every lump should be examined thoroughly.

What battles (disease, metastasis, how many times in remission/relapse) did she endure and for how long? Explain what impact this had on you personally and how it changed both of your lives/perspectives, good and bad.

Jaime possessed a natural ability to find the positive in situations. She never complained about her circumstances. Not one time. She never had a pity party. I’m sure on her own time alone she often struggled, but she never divulged any of those feelings. She made light of the adverse reaction she had to steroids during her radiation treatments. She would joke about how the development of Cushing’s Syndrome was the worst part of the entire cancer experience because she had a 100 pound weight gain which was painful and left her almost unrecognizable. Her skin began to split in areas from the rapid weight gain. Her body ached all over.  They learned that the steroids they were giving her for pain control caused her adrenal glands to fail and shut down. Jaime didn’t mind loosing her hair. She liked hats. She knew she could manage the mastectomy with future reconstruction surgery and prosthetics. But Jaime did not know how to be ok with the Cushing’s Syndrome and her physical immobility and intense pain. In my opinion, the most challenging piece through her cancer journey the rapid weight gain and pain that accompanied it like an orchestra.

Jaime was diagnosed in October of 2011. She started chemotherapy quickly. Her lump was so invasive and so aggressive that they feared removing it without hitting her with a cycle of chemotherapy prior to surgery. Jaime had 7 rounds of chemotherapy between October 2011 -April 2012. On May 11, 2012, Jaime underwent a bilateral mastectomy and sentinel lymph node dissection. They inserted tissue expanders inside the chest wall to reconstruct her breasts with implants. The expanders were placed behind the muscle of the chest wall. The idea was to slowly stretch the skin by filling the expanders with air overtime to accommodate an implant.

We moved into her apartment in May after her mastectomy to care for her and Jameson. She couldn’t be alone and certainly couldn’t care for her three year old son by herself. I spent my days with Jaime, Jameson and my 7 month old daughter Poppy. I took her to appointments, cared for her and the children and did all of the normal day to day tasks and errands. I had so much help from Adam at night and on the weekends.  Following her discharge from her mastectomy, Jaime’s pain continued. She had so much pain. She was so weak and tired. Her surgery sites began to show signs of infection. I called the clinic with great concern. I was reassured several times that what I was describing was “normal healing”.  When her pain became unbearable, I brought her into the ER at a different hospital. She was quickly admitted after examination. She went into surgery the next day to  have the tissue expanders removed because she was septic. I felt so angry and so frustrated. I felt like I let her down. I had called several times with concern. I was always told that it was normal. Now she had a major setback in her recovery.

After that surgery to remove the expanders, Jaime never really felt good again. Ever. It was like the infection had gotten into the core of her being. She was so unsure. Her days and nights consisted of doctors appointments and pain management. After that surgery she went six months without seeing a doctor. She moved to Waseca and rented a house. She and Jameson lived right next door to our mom and stepdad. She just never felt good. Mom and Dad expressed concern about the lack of medical care and lack of follow up. Jaime was in a deep dark depression. She seemed to feel like they did everything they could do for her and this was what she would endure. We felt that she should be closely followed with scans and check ups. Nothing was scheduled. She had no desire to go to the doctor. Then in November of 2012, Jaime came to visit us in New Hope. She was in so much pain in her hips and low back that she could hardly walk. The pain was constant and ibuprofen wasn’t even coming close to touching it. Adam encouraged her to go to the ER. After some persuasion, she agreed. The ER dr in Plymouth MN listened to her history and decided that a pain injection of Tordol  to her hip would suffice and he sent her home. No scans were ordered. Her blood work showed elevated white cells and all of her numbers were either a bit high or low in almost every category. They knew she had cancer earlier that year. Why wouldn’t they have investigated her complaints and concerns more thoroughly? She was a 33 year old single mother with a history of breast cancer. I will never understand the lack of care. Fast forward a month later, she has similar complaints of low back pain and hip pain. Adam takes her into the ER again, and she gets the exact same diagnosis and treatment. They say it’s likely menses pain and they encourage a hot bath and ibuprofen. That was in December 2012. A moth later, on January 21, 2013, she fell in the bathroom in the middle of the night while visiting us in Duluth at our new temporary home. Jaime managed to crawl into the living room where she was able to wake us with screams like I have never heard before. After helping her up, Adam got her into our SUV and drove to the ER at St Lukes. At 3am on January 22, Adam texted me that he and Jaime were meeting with a neurosurgeon and likely she needed spinal surgery to fix her broken lumbar. He also mentioned that they were quite confused how she managed to break her lumbar by falling in the bathroom since the lumbar is the strongest part of the spine. After laying flat for 4 days in a body brace, the biopsies revealed that Jaimes entire skeleton had been infiltrated with breast cancer. I remember the look on her face when they told her that her breast cancer was a stage 4 and terminal. She looked relieved. She looked frightened. She looked so young and so lovely. I was engulfed with sickness and anger. Terminal breast cancer?!! How did this happen?

After she broke her back, she realized that St Lukes hospital in Duluth Minnesota was where she was meant to be. She began her care and treatments of weeks of radiation, many surgeries, continuous chemotherapy, injections in her neck and back and pain management. The nurses and doctors were incredible at St Lukes. She felt cared for and loved and validated. Her pain was finally explained! She could finally trust medical staff. She became so close to her oncologist, Dr. Based Goueli and her nurse Terri. They gave her the greatest care and love. She trusted them. I trusted them. We were able to navigate through all of the bad news together and even in her final days, she felt comfort and trust when she talked to Dr Goueli or Terri specifically.

During her battle, she also had to have a hysterectomy. Pathology of her ovaries detected breast cancer. From there, Jaime’s cancer spread into to the liver. Her care team kept up on her treatments of chemotherapy and she was able to fight for another year and a half. Jaime ended up passing away on a beautiful sunny Thursday morning in the arms of me and our older sister and our parents. Jaime had been in hospice care at St. Luke’s hospital for less than a week. Jaime died from liver failure caused by metastatic breast cancer to bones and liver. She had so much trouble breathing in her final hours. I remember feeling like she was drowning and I couldn’t pull her up or give her air. She fought until the last breath. April 14, 2016 was the hardest day of my existence. I lost a big part of myself when she passed. She had been unable to communicate the last day, but moments before she died, she opened her eyes and made brief eye contact with me and began to cry. She quickly shifted her eyes to our sister Ericka as tears fell down her face. Her eyes fixed towards my parents with her last breath.

I remember my mom placed her delicate hand on Jaime’s sweet face as she gently ran her palm down over her eyes to assist them to close. I remember the sound of my dad pulling a bandaid off of Jaime’s arm and throwing it across the room as he wept. I continue to replay these moments over and over- just like the the day she was diagnosed. The connections. The similarities. The tears. The beauty and the tragedy of it all. The brief eye contact that cut like a knife, the tears that poured from our eyes like wine, and the fear and yet the calming sense of peace that embodied all of it.

What did this consist of for you personally – to recall being a cheerleader on the sidelines, observing, but being unable to save them? (Ultimately the trauma of being the survivor).

I am forever grateful that I was able to care for my sister during her fight with cancer. I was able to support her and fight right along side her. I made sure she knew that she wasn’t alone. It’s been a month since she passed. The sorrow and pain really does come in waves. Everyday I wonder if there was anything more or anything else I could have done to help her have more time. I guess there will always be a part of me that will lament over the possibilities of treatments and cures. She ultimately decided that she would fight until the very end and she did. She fought so hard. Now I sit with my sword down and my shield up. I am still at war but all of the enemies are gone. I am less now. I am forever less without her here beside me. I will never understand why my sister had to fight so hard and ultimately die fighting breast cancer.

How has this changed you and your life course? 

Jaimes diagnosis absolutely changed me. I changed because I had to. I quit my job to care for her, we cancelled a move across the country to care for her, and I directed my focus and energy towards her health and healing.

Jaime and I were somewhat different from one another. Physically we were basically opposite. Our personalities, although different, meshed as we complemented each other well. We understood each others sense of humor. We had so many common threads and so much interest in one another. We had our own language and the ability to read one another with little effort. Sometimes we even felt one another’s pain or discomfort when apart. Jaime was 20 months older than me. We were only a grade apart in school. She always joked that I was the “big sister” and she was the “little sister”. I was taller, so that was ok with me. I will remember Jaime as an intelligent, loving, generous, carefree, slightly unpredictable, esthetically well maintained, stylish woman. She always had a big beautiful bright smile and she was always late for everything.

Since her passing, I have had a strong pull towards becoming more carefree and less concerned about details that don’t matter. I’m trying to learn to live in the moments that we are given each day.

I am contemplating my next steps and trying to discover what is best for me and what is next for me now that she is gone.

Do you feel you’re meant to do something differently with your life because of her death? And if so, what is your hope/goal? How do you want her to live on?

Jaime left me with three quotes:

“Be a rainbow in the cloud”  

“Something will grow from all you are going through, and it will be you.”  

 “Don’t worry, No one likes a know-it-all”

I am doing a lot of soul searching and digging deep to find my balance and my purpose in life. I believe that Jaime’s spirit will help to guide me down the best path.

I do feel that I have great compassion and empathy and love and concern for others. Jaime has always encouraged me to become a nurse… but she also wanted me to pursue an acting career and become a professional photographer so I’m a bit confused about her impression of my actual talents or calling. I guess I may be confused as well? I feel like I need to find a vessel that allows me to help advocate for people struggling to find the medical care that they need and deserve. I don’t want one more woman with a lump in her breast to have to go to four doctors just to get a mammogram. I want to bring awareness to breast cancer affecting young women. Breast cancer isn’t only killing post-menopausal women. Breast cancer doesn’t discriminate. Men, women, young and old are all candidates for breast cancer. Screening is key! Early detection saves lives. Genetic counseling helps us to make informed preventative decisions  about our health. Who knows, maybe my sister would still be here today if the first doctor who saw Jaime would have ordered a simple mammogram.

Jaime will live on in the masterpiece she created. Her strong loving intelligent boy Jameson carries her beauty, strength and perseverance. He has her personality and her heart of gold. Jameson is the greatest legacy and a beautiful reminder that my sister still remains.

**If this resonated with you, feel free to share on Social Media to not only raise awareness, but bring hope to any that may be struggling**

D-Day

/ Revolution.07 / Leave a comment

blog-storm

I’ve been on a bit of a hiatus the past few weeks for a few reasons, but as I’ve tried to move forward with this subject in a few drafts, I couldn’t get it to piece together! It came to me that the reason being was because I was trying to modify it. I wanted to sugar coat it, I wanted the portrayal of it to be in a ‘decent’ format and a ‘mature’ demeanor. Or, perhaps just skip over the facts leading up to ‘it’, I preferred to just to skip to the aftermath of ‘it’. But the thing is, that wasn’t the truth of the matter – that wasn’t real life then – while it was actually happening. I was wanting to block the rawness and pain that followed it, I wanted to edit the story and downplay the events and emotions. I didn’t want to have to see how clearly the signs were there and ask myself (as I’m sure many others will be thinking while reading it) “what in the f**k were you thinking – it was so obvious?!” But that wouldn’t be the true story and it wouldn’t be my story or perception. So, as nervous as I am to see how this may come from my hands, I see now that it needs too – in the rawness and realness in which it was felt then, despite what it ‘looks or seems’ like. I guess that’s part of writing – the vulnerability of it all, things are always clear from the outside – but this was my truth, from my perception – it’s a part of my story – and maybe I need to allow whatever comes with it, the anger, hatred and blame to be felt as it was then.

I always knew when things were off, I could feel it, his distant demeanor and coldness spoke volumes. He was far easier to read then he realized – it started with the blaming and knit picking of anything he could think of, then drinking more and talking less. He was more irritable, and then the threats would start pouring out, like “what would I do if I didn’t have him, I’d never be able to make it on my own. Or how I’d have to move back in with my parents and he’d take our daughter – he’d start playing things out, trying to plant a seed in my mind that I would be screwed when things went south – knowing the end was in sight. It didn’t take long for me to start asking who it was, which only led to more fights about how I was turning it around on him because I wouldn’t take responsibility for the fact that I was wrong. I would try and leave it be, knowing damn well I’d either break and kick him out or it’d surface – and I’d still kick him out. Either way, he’d never be the one to leave, he always knew he could push me to my breaking point – it worked out well to play the victim – that his girlfriend kicked him out –  but also gave him the free reins he was hoping for. After a month or 2, that got old and security sounded again. So, back he’d come. I’d hold my own for awhile, keeping him at a distance – but he’d find the damnest ways to wiggle himself back in. And, I’d allow it, never fully letting it go though, it just added to my own insecurities, bitterness and unhappiness. “Forgaven but never forgetten” was what I’d always say – but that wasn’t the truth – it couldn’t be – there was too much damage done.

In hindsight, to say I was surprised by the actions and events that followed was assanign – given the people involved, there was nothing surprising at all actually! But, still, I allowed myself to be shell shocked. The straw that broke the camels back, the spade of spades – the ultimate finale was 6 weeks after we were married, when I found out he had been having a 5 month affair with my uncle’s wife. 6 weeks that were anything close to a “honeymoon” status!  That’s right people – a new meaning to ‘Hollywood marriage’ being that we managed to beat Kim Kardashian – we didn’t even make it 75 days! ha 😉

I would be lying if I said she was ‘welcomed’ in the family from the get go. For as young as she was, we knew very well what her past consisted of. The way that her and my uncle met, wasn’t exactly ‘stable’ by any means and everyone was all around nervous to see how this would shake out. Josie hated her, she didn’t hate very many people – but she wasn’t budging on this one! She had done some things to Josie that were far from nice – but we told her she needed to get over it and maybe she’s changed – besides, he’s happy and oh yeah – she was pregnant! So, we all decided we were happy for him – that he had found such happiness and decided to give her a chance. She blended fairly well into the family – but there was still something about her that people always had their guard up. She was a good mom – they both seemed happy together, they were clean and she seemed to do less pathological lying! lol

The spring of ’09 consisted of spending alot of time with her, my uncle and their 2 boys, it worked out great considering they lived a half a mile away and the kids could play! Her and I would go for walks and she’d show up quite frequently just to say ‘hi’ with homemade goodies or suppers. Always calling to ask if we wanted to go have supper somewhere – he’d  generally say no and I’d talk him into it – just like she knew I would. We all had a ton of fun together, having fires, taking the kids on rides, fishing, grill outs – you name it. When they say ‘keep your friends close, your enemies closer’ – she did that perfectly! The more involved they became, the closer we got. I remember him coming home shaking that May, saying that my uncle went after him – saying that ‘he better not come near his wife again’. I was so floored and confused, why would he say that – what was he doing that he’d make that accusation? I remember watching him pace outside, scared shitless – he knew his days were limited. I remember thinking as I looked out the window, “is there something more to this, this is so weird.” When he came back in he said how my uncle was trashed and probably messed up on something again. They planted that seed well to avoid any eyes on them and whether or not that was the case, still didn’t excuse what they were doing. When I asked her about that situation – she said how bad it had been and that she needed to leave, that he was in so deep with booze and probably more that she can’t take it anymore – he’s lost his mind. Then there were things that started matching up, like I’d see him with a beer or people would comment that they seen him out and I’d think ‘oh shit, maybe she isn’t lying’.   I remember having a fleeting thought of ‘did you get him back into it, knowing this was his downfall and you could blame him and bolt?’ I was so embarrassed I even had that thought and dismissed it. She would have him take their kids home to bed and she’d stay and wouldn’t leave, finally I’d be tired and go to bed, again, like they knew I would. The interesting part was, I knew something was off with him – but she was good that I didn’t suspect her until right before things went south. I had a random fleeting thought, but once again dismissed it, because she never wavered – it was quite impressive actually! Blind as a bat I was at first. It came to the point that I made several comments that I wish I had included her in the wedding as I had gotten very close to her. Puke.

About a week or 2 before the wedding we were laying in bed and I said “do you even want to do this – I feel like something is going on and I don’t like it” he hesitated and said “I have something to tell you” – but it wasn’t that. It was something else he knew I’d hate and was hoping that’d be his way out. I said – OK, we can deal with this – I’m not happy about it, but I guess I still feel like you’re not here or into this. From there it went from we can’t back out because people have already done so much for us and there’s so much money invested to he’s just nervous. I gave him the option a few times to back out, I didn’t care what was invested – there’s no point in following through if there’s something more – but he couldn’t bring himself to say it and I couldn’t bring myself to pull the trigger either. I didn’t want to make an ass out of myself if it was just nerves and besides, I had already postponed the wedding a year, because I was nonfunctional after Josie. So, he reassured me it was just fine.  I had told her I got him Metallica tickets for a wedding gift and was so excited to give them to him because it was his favorite band! When he opened it at rehearsal dinner that Thursday, he barely reacted, I was like “hellooo – it’s fricken Metallica – we’re going to see Metallica!!!” He said – “I know – cool – thanks!” Again – I was thinking what the fuck – that’s it!? Later to realize she had told him. He sat in the bar the night before, I had no idea where he was until my parents said they were both down there. She brought him home late and trashed and I was so pissed!

We got married on D-Day (which I just realized last year HA!) It was blacker then hell with torrential rains from beginning to end that day. Beautiful the day before and the day after – but that day was terrible! She sat in the 1st few rows at the wedding, I can still picture her, I remember the look on her face when she walked in and thinking, that’s an odd reaction. It was one of disbelief and almost like she could vomit – like he’s going through with it, now what. My uncle stayed sober and drove us home that night, we were trashed and she kept saying they should stay for after bar. The rest of us said no, we were shot and her not being happy about it. Unreal what you observe, think and ultimately know without ‘facts’ and yet finding yourself needing something concrete in order to justify it, isn’t it?

Things calmed down for a week or 2 and seemed to be possibly mending. He started pulling back when she would call and ask and I was getting irritated because I wanted to go do stuff, but he kept blaming it on my uncle, how messsed up he was and wasn’t going to forgive him for making that accusation. I began to realize how much I was sleeping days away again and feeling just plain shitty, so without telling him – I went in and got my meds switched, hoping perhaps if I was feeling better, we’d start doing better.

On July 14th, I decided last minute to chop my hair without telling anyone, hoping I’d feel better and he’d like it. When I walked in and said “surprise!” he asked what the fuck I did that for. That’s when I knew there was more, of all the shitty things he had done, he never downgraded me (in an obvious way) for all the weight I put on, he never commented, he never told me I looked like shit, that I should or shouldn’t eat this or that, or that I should be going to the gym with him etc. And for someone that thrived off of his looks and body image – it was kind of surprising he didn’t! But this was on a different level and one of the few lines he had never crossed. I knew he was doing everything in his power to have an out and I wanted to know why. That night, as he put our daughter to bed, I went through his phone. The only thing I saw from her was “when do I get to see you again?” This was my own ‘D-Day’ – one that not only affected me on so many levels and in so many aspects of my life for years to come – but also my entire family as it was more then just me involved. For myself, my uncle, the 3 kids directly involved, my grandparents, my parents, my dad’s business (since he worked for my dad and was one of his lead guys), aside from that, they were very close, the ripple effect it had was beyond one household. After reading that, I felt like I was having the 1st of a few out of body experiences as the anger and emotions started to overcome me. It was a whirlwind, not knowing how I was going to approach this. So, I waited until he came down the stairs and from there shit hit the fan – and it didn’t stop hitting for the fan for a very, very long time!

Dreaming Another Nightmare

/ Revolution.07 / Leave a comment

blog - reality

Isn’t it funny how when you’re younger, your future plays out in a certain format? Your dreams follow this ‘ideal’ timeline of pure perfection! Life was going to be damn near perfect in every manner, there really wasn’t much I hadn’t dreamed up in my fantasy world – except that part where the train derails and I end up in bumfuck Egypt in the middle of my own shit storm that I really thought couldn’t get worse, but oh wait – IT JUST DID!
Let’s just rewind to the fairytale for a minute. Back to the dream land of getting a collage degree in Education, followed by being married by the age of 23, 1st child no later then the age of 25 (I didn’t want to be an old parent!) Then 2, maybe 3 more kids every 2-3 years to follow, I wanted them spaced just perfectly in age! I would have a nanny so my kids didn’t have to go to a daycare with other bratty kids! They’d be in a private elementary school in a larger community when they were younger so they learned diversity and the importance of it, but by middle school, we’d transfer to a smaller school system, so they could learn and appreciate the importance of a smaller community, I wanted to know the parents of my kids’ friends, and them to know everyone they graduated with,  like I was fortunate to have growing up. I’d be happily married for years, we’d travel a lot and my kids would have a lot of great experiences and memories, hopefully building the basis of their future by being curious of the huge world out there! We’d eventually move to the country overlooking the mountains to retire and enjoy the peace and quiet. Uh, life was going to be so great – god I couldn’t wait!

And then – one day – I woke up to a very different reality – back in Egypt. I was standing in the middle of a very different dream, more like nightmare, not knowing exactly how I managed to end up there!

Instead it went something along the lines of being 18, having a blast partying and working, going to the local college that I knew in my gut wasn’t going to pan out, but I played along with the role and ‘tried’ it. By trying it I mean I passed 2 of the 4 classes the 1st semester, the only 2 I was interested in to begin with, which was English and Psych. Instead I focused more on how damn good it felt to be living on my own, with 4 other good friends of mine, hanging with my new, good looking and older boyfriend, being free of rules, demands and chores and just plain loving life! This older boyfriend was eight and a half years older, which, at 18, is a big deal! Age is just a number on many levels, but at certain times in our lives, age does matter (I know mom – finally I got it! Better late then never 😉 ) I was with someone who was in a relationship, although I understood it at that time that it had ended (by ended, I believe he had moved out a few days prior), and I was also recently out of a relationship, for about a week (yeah – I know – total saints  – for sure). So, even though I more then knew better, he seemed very interested and I wanted it to be what I knew it wasn’t – but I still really wanted it to be what he made it appear to be!

As if age alone wasn’t a factor, the fact that he worked for my dad and was very close to him, was an obstacle in itself. But, rebellion was still running thick in my blood – so I ran with it, secretly hesitant, but outwardly, I’m sure I appeared cocky. I will never forget sitting in my parents kitchen, explaining to my less then impressed, quite frankly – my pissed off mother, that it was going to be just fine! The only thing I remember out of that entire ass chewing was her saying ‘you are nothing but a rebound to him and he is nothing but an infatuation to you.” Ouch. That stung. That stung alot – but what stung even more was when I had to call her bawling at 5 a.m. four months later – after my friend and I showed up at his exes house, banging on the door at midnight wondering why he was with her and didn’t have the balls to come to the door! (I’ve had prouder moments – yes).

I remember that sick heavy brick that festered in the pit of my gut for weeks after that night. I remember the replays, waiting for the next phone call, the begging, more lies, more apologies and finally, after making him ‘prove’ himself – me giving in. The ‘proving himself’ part consisted of him having to go explain himself to my mom, since she was the one that had to deal with 5 a.m. phone calls after months of seeing it for face value, I figured he could start there (not thinking he actually would!) This was the beginning of many more years worth of anger, manipulation, game playing and drama that I learned to play along with. Giving into something I knew wasn’t true, but again, I wanted it to be. Besides, he had spent years with her, of course he was going to go back, he still loved her on some level, how couldn’t he, maybe if I were thinner, older, more stable, more wise it wouldn’t have happened. Note for this next time around I guess, right? Welcome to my thought process!

I think more then my hate for him was the hate for myself, the way I held out for so long, just to give back in at the last minute. The hate for believing it, wanting it to be different then it what it was, but not knowing what that meant. Hating myself for not being what he wanted, for feeling the need to compete against other women, the bottle – anything. Hating myself for giving into the drama and nonsense, thinking every other ‘next time’ was going to be different then the previous last times. Hating myself for allowing the lies to flow so easily, for getting bogged down by it all, to the point of no longer caring, for giving into it, when I fought so hard not too, for so long. Hating myself for seeing it before it happened and yet waiting – almost wanting in some sick way – for it to happen again so I had a reason to bail again. I became reliant on the next fuck up, it kept us both fueled with anger, hate and drama – just to need some sick reason to make it all ‘better’ again – for a little bit anyways. And when it really came down to it, what I hated more then him – was myself – that I gave up me for him – that I changed my life, goals, dreams, morals and beliefs to fit something that was never in alignment with me to begin with. I hated myself for giving into the fear every time – the fear that he’d change for the next one and that I may miss being truly happy with him, fear that my daughter might not have the chance of knowing her parents to have a good, stable and loving relationship, fear that I might be alone forever, and that maybe I should be thankful he’s with me at all. That I thought I could change or ‘fix’ him – when it wasn’t about that – it was about 2 people that became miserable together on account of their own insecurities that were never resolved, caught in this vicious cycle that became routine, one that subconsciously we both thrived on. It was about 2 people that simply didn’t belong together, that again, tried to force pieces of the puzzle to fit, that were never meant to fit. It wasn’t about ‘training’ him ‘my’ way, with ‘better’ morals or expectations of him wanting the same family life I did, it wasn’t about ‘owning’ him or forcing him into things that quite obviously he wasn’t interested in, as his actions always showed it. He did fight for me on many levels, perhaps more then he had in previous relationships and perhaps in some ways- we could’ve been more – but not at that point in our lives. It had become so toxic, so full of mind games, when one was ready to party, the other didn’t want to leave the house, when one wanted to be saving money for a house, the other couldn’t blow it fast enough, when one was ready for marriage, the other wouldn’t even utter the word. We were rarely on the same page and when we were, it felt like we were on top of the world, that one week you would’ve sworn lasted 2 years without a single fight! ha Those short intervals were what I began to cling too, because that’s all I had – and they became fewer and farther between. And when push comes to shove – timing is always everything. After Josie, any speck of interest I had left, any excitement about moving forward in our lives, anything to do with him at all – was lost on every level within 24 hours after she died. As if the animosity wasn’t already there before – it intensified after that – he was to blame on every level for anything and everything I never did or didn’t do with her. And that was the beginning of the grand finale to follow – the one that trumped all other trumps. But then again, I guess that’s what happens when you choose to live in a fantasy world, talking each other, and ultimately yourselves into truths that weren’t ours.

 

The Aftermath

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In my head, the aftermath looked like a scene from a natural disaster. The people and place gets rocked by the chaos of the disaster, just to be left standing in the middle of what feels like a chaotic wilderness of nothing.

There are few things from that day and the days to follow that I can’t remember verbatim. From the time I got the email as I was shutting down my computer at work asking ‘have you heard from Jos today?’ To the phone calls made within that half hour waiting for my bus to go home, to me knowing that the next call coming through was going to bad. I knew it before I knew it, shit, I had already played it out in my head, I was getting off the bus to meet my mom at the hospital, because I assumed she was going to call back saying there was a message on the answering machine that she had been in an accident. The bus was pulling out as she called back and it’s as if the conversation played out in my head minutes prior, except she called frantic that she wasn’t breathing. I ran off the bus, planning to meet them, just to find out it wasn’t needed.

I was the last one to get there that night by the time I got a ride back. When I got there all of my family and then some were there, including her, as they hadn’t come to get her yet. I remember feeling a sigh of relief when my mom said she didn’t want me to go in because she didn’t want me to see her like that. And then there was the guilt the next day for not seeing her, for not laying with her, for not getting in more kisses and hugs when I had the chance. For being selfish, like I always was, for relying on someone to tell me what to do, for being afraid of what I’d see, afraid of it being real.

My dad was in Montana on his first mule hunting trip so we had to wait until he could get home. I can’t imagine what that day must’ve felt like for him, feeling a million miles away, unable to get a flight out sooner, walking around aimlessly feeling even more hopeless then we did actually being there, surrounded by everyone. I remember walking to the car to meet with the funeral home and saying to my fiance, “Is this really happening? We’re going to make funeral arrangements? Is this our life, is this for real?” And him responding, “yes, I’m so sorry”.

The funeral was on a Sunday, it was November – colder then hell, raining and sleeting. The family had visitation prior and I just wanted to hog her! There just wasn’t enough time to fit in every single I love you, I’m sorry, kiss and hug for all the times I chose not too. We were told due to the amount of people lined up, we needed to begin earlier and I remember being pissed. Pissed because I didn’t care who was standing in the freezing rain, this was all we had left with her, tomorrow she would gone forever, we needed this time – we deserved this time! The next 6+ hours consisted of hugging and talking to about 1100 people, one of the largest wakes they had hosted to date. It was overwhelming to see the amount of people that came through, from old to young alike. But I couldn’t help but think, do you see this Josie?! Did you have any idea how many people your choice has affected? I wish you knew, why did it have to be this way in order for you to see it? Those hours consisted of going through the motions, being introduced to people, hugging, and saying thank you for coming, but oddly enough, not all that much crying. As I would look out beyond the people’s shoulders that were standing in front of me, seeing no end in site to the line, there would be certain random faces that would just trigger a melt down. But all in all, as we stood on the other side, we held our shit together pretty well!

The funeral was worse for me, once again we weren’t able to get additional time with her like we’d planned due to the number of people packed in the church. And once again, I was pissed because I didn’t give a shit – this was it – this was the last time of any physical contact with her, even if it was in this form. As I bent over to kiss her and hold her hand and try and squeeze in the last of apologies and I love yous, I managed to lose a contact through the tears. This was less then ideal being that I was doing the eulogy! The closing of the casket was about enough to make all of us hit our knees as we knew this was it. The remainder of the service I concentrated on trying to hold it together so I could make it through the eulogy, I knew if one tear fell while I was up there, it’d be game over and I wouldn’t be able to finish it. I did – I delivered and I felt I owed her that. As we exited they played Eagles Wings, one of my favorite hymns and that’s when I lost it, following the casket out to the hearse, but it was worse watching them lower her in the ground. I remember being told the services are more for everyone else to come and mourn the loss and pay respects to the family, then it is for the family. It isn’t until after that, do you get a glimpse of what our new reality is about to look like. We learned how much truth was behind that statement.

Fortunate is an understatement of what were when it came to family, friends and community support. I mean, besides the fact that the wake alone consisted of 1100 people, the amount of people that remembered long after that was still so impressive. People were stopping by a few months after, always calling and asking what they do or how they could help – the response was so humbling in so many ways. Looking back, it’s overwhelming to think how fortunate we were and are! The simple gestures of hand written cards with poems and nice letters, not even just then, but for birthdays and anniversaries to follow – that people remembered! Things that are so hard to appreciate at the time, but that speak volumes in so many ways, that we often forget as the time passes. Not many can say that and I feel fortunate that we can.

But despite the tremendous support surrounding us, there was still this calm after the storm – when the world around you starts going back to their hustle and bustle and you’re forced to have to sit with it and really swallow and digest it. It was in the quiet that it really started to settle, the pain began settling both physically and mentally and the sobering truth spoke volumes. It was learning how to recalibrate our days of going back to work and into society with this….heaviness. To know eyes are on you, not knowing what to say, and if they did say anything, it didn’t matter anyways, because nothing took away the pain. Nothing even put a dent in it. It was hard to appreciate those that expressed their condolences because I was so numb, that and it was the fear of breaking down. It was such a toss up at first, one day it’s as if I was offended if someone didn’t say anything and then other days I’d pray they wouldn’t because I wouldn’t be able to contain the tears! To attempt to focus on the task sitting in front of me was next to impossible because the only thing I could think about was her. Where I went wrong, how I didn’t see it, how the rest of the world gets to pick up and move forward and how I have no clue what or where in the hell to go from here. Who am I? What is my life? Is this real or am I still in a nightmare? When will I wake up? There were no amount of words or actions that were going to change the outcome or bring me any type of peace. It was nice and it was humbling, don’t get me wrong, but at the time, I couldn’t appreciate it.

The destruction that came afterwards, the kind that settled in with the stillness and quiet – this new ‘norm’ – this new ‘reality’ – this new what the fuuuuuuuck?! It’s as if you’re looking at your life through an outside lens saying “what’s happening, where are you, did the plot in the story change – get out of this!” ha And to think, on so many levels – it was only just the beginning.

Continue reading Missing Piece

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Blind Faith

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The first bible verse I memorized was Matthew 5:8 – “Blessed are the pure in heart, for they will see God.” The only reason I know it is because it was on my letter from Josie. I was born and raised Catholic. Not strict Catholic, but we attended mass on a regular basis, I completed my sacraments through Confirmation and we prayed before meals and bedtime.  These were all things I knew and learned, but nothing I was ever able to really connect with. They were motions that I went through, because that was the ‘right’ thing to do, but I never had a true desire or connection to it. Although on occasion, I do enjoy a good sermon, and I’ll be honest when I say I can’t imagine having a funeral outside of a church, I certainly didn’t feel ‘cleansed or glorified’ per se after leaving mass and a part of me hated that I didn’t “get it”. I was secretly jealous that my grandma, mom and sister did. What was wrong with me? After I had my daughter, I found myself repeating the same cycles, feeling as though she might be damned if she wasn’t baptized or enrolled in religion classes. Finding it necessary that we make as many masses as possible and that she grow up knowing how to ‘properly’ act in the church. I remember gloating about being Catholic when I was younger, honestly, I think for no other reason then feeling as if I were superior to others because of it. Because it is the largest religion, the highest money making religious institution and Lord knows we must have the most morals! Right?!

Both of my parents came from strong faith based families, whether Lutheran or Catholic, they were both raised with the importance of having it in their lives. They didn’t sit in the front row for show and I don’t remember talk of one religion downing another or thinking another to be superior -I just remember it being a base to their households and something that was carried into ours. From my perspective, on my mom’s side, it wasn’t about the religion as much as it was the faith. The connection between them and God, and yes, the importance of the institution to practice that. It was something that was built from having nothing else to stand on, from enduring times when the weight of the world seemed to collapse on their shoulders. From my grandparents watching their 3 year old son go through the Ramsey Burn Unit due to 80% of his body being burned, to losing their home and livelihood, a house fire, struggles with addiction, 2 bouts of breast cancer and a many other shenanigans in between! To my parents having me at the age of 16, enduring a strenuous marriage, from being broke throughout their 20s and having to build financial security from the ground up,  to losing their daughter, depression to dealing with Melanoma – I think it’s fair to say between them, they’ve been through some shit! And never wavering – I got the same answer every time – “our faith is what got us through, without it, we wouldn’t have made it.” And no matter how many times I heard that – I would still think – but HOW?!

Looking back, the real game changer for me in regards to the church setting, was after she died. I don’t know if it was as much of a hatred towards God or the church, but more of an absent feeling and even more so, was replaying the funeral everytime I entered the building. Every time I walked down that aisle for communion I had all I could do not to lose it. The only thing I saw was a packed church while we followed the casket down. While I lost interest in the church, I was immediately compelled towards a different form of faith – one that I’ve been drawn too ever since. 

I began reading so many books in regards to life after death and what happens to the soul once it leaves this ‘shell’. She died in my parents home, the kitchen to be exact. For many people, losing someone in the home is ‘creepy’, but for us it was a comfort, feeling as if she were still present and there with us. I began relying on that comfort, constantly talking to her and asking for guidance and support, while trying to be aware of the signs she put in front of me. And she more then delivered them! From my ex being freaked out because he overheard our daughter saying “good night Josie” at the age of 3, to her walking into my parents house and saying “hi Josie!” while looking over my mom’s shoulder, and then “I’m swinging up to heaven with Josie”. While reading her a book and watching the door start swaying just to have my ex run around trying to figure out if there was a window open while I sat and smiled and said “thanks Jos.” These were comforting, not creepy. they were and still are vital to us, that wave of relief hearing her name or the song Santa Monica. This was the start of this faith, which had less to do with Sunday morning sermons and memorized prayers and more to do with me and a direct relationship with God. Learning that although they’ve left the physical plane, it doesn’t mean they still don’t play vital roles in our evolution. 

I’ve realized I don’t have to sit in an institution every week to feel as though I’m being judged, shunned or approved of by others as to whether I’ll see the Pearly Gates when my “time comes”. That God is in every single living thing that surrounds us, and maybe if we paid more attention to the sunrises and sunsets, the green grass, snow covered trees or sitting and playing a game or coloring with my daughter, we’d see more of him. Maybe instead of bitching about how we’re entitled because we have jobs, while others are trash because they don’t, instead of judging on account of race or the home in which they live, instead of debating over politics and religion and which one is better and why – maybe we’d be putting more ‘God’ in our lives in a more useful way – each day, and not just for an hour a week. Maybe if we did more “I’m grateful for…” and less blaming the next guy, maybe if we paid less attention to social media and more to the ones in front of us, or read more Upworthy articles instead of listening to CNN, maybe if we smiled or complimented strangers more instead of instantly pointing out their outfit or weight gain or loss – then maybe we’d be a little more in alignment with that sermon? Am I saying I’m perfect in all these areas – ummm, NO – I’m still a work in progress too! 

But I feel like I’ve found a faith that is more concrete then I’ve ever had before, based on beliefs such as these. To realize we’re all souls just having a physical experience, this is just our ‘shell’ for awhile, but in the grand scheme of things we/they are still here to help guide us. That we’re meant to keep moving forward, always bettering ourselves and seeing things in a larger light.

I’m starting to see that we’re all bits and pieces of this Universe and each other and I don’t need a priest to absolve my sins, nor to bless me. I remember my cousin telling me after seeing the Dalai Lama, that people in the audience asked him to bless them and he said no, they didn’t need him, nor anyone else to do that for them. We’re all equal, we’re all of something bigger and higher, we don’t need someone at the pulpit to make us ‘right’, ‘better’ or ‘saved’ – we’re here to save ourselves – do we need God to do it? Yes. But since Josie has left, I’ve found a faith I didn’t know I had – one stronger then I could’ve imagined, and although this faith may seem unorthodox to many, it’s one that I’m finally able to connect and be comfortable with.

Continue reading The Aftermath

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Apples to oranges

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APPLE TO ORANGES

“Whatever happens to you, belongs to you. Make it yours. Feed it to yourself, even if it feels impossible to swallow. Let it nurture you, because it will. “ – Cheryl Strayed

There were many years I truly believed it was impossible to take any more blows. I was sure that there was no humanly way possible to survive them if I was forced to take another hit. I thought I was the only one that endured that kind of tragedy and pain to the extent I did and within the short amount of time that I did. In the same breath I’d find myself looking around and thinking ‘don’t complain, it can always be worse, you have so much to be grateful for.’ But I was wrong – about most of it.

Maybe by constantly feeling as if I had to bury it, that I wasn’t ‘allowed’ to complain, vent or cry about it – I was only making it worse. Maybe feeling like my circumstances were less then so many others or that I didn’t have the right to feel and think the way I did, only prolonged my healing further. I mean, don’t get me wrong, I had alot of safe havens and wonderfully supportive people in my life (God only knows they listened to me like a broken record of the Titanic song replaying over and oveeeeer!!  Even though I had those outlets I was still always thinking I didn’t have the right to feel bad, sad or mad about certain parts of it. And more importantly I think the focus of those venting sessions were being placed on things and people that, at the time I thought were the issues. Primarily because I couldn’t say what I was actually thinking, or perhaps I just didn’t allow myself to go there mentally. It was as if the only emotion tied to her was sadness and the only one tied to him was anger. I couldn’t be mad at her or sad over him because it wasn’t her fault she felt that way and I couldn’t cry about someone who I was supposed to be happy I was rid of. It’s as if it’s ingrained in us to always remember ‘it could be worse’ or ‘at least you aren’t them!’ So, while I had outlets, I was always playing this game with myself that I needed to quit, needed to get over it, needed to stop thinking or feeling certain things as they arose. So, instead I’d go back to my default emotion and cry or rage depending on which one it pertain too 

There’s this constant comparison in our world that we always need to shut up and just be thankful. While gratitude is important, burning our stories and emotions surrounding them, only further suppresses what is already there. We have every right to endure them in whatever manner we need too in order to work through them. It’s as if we can better justify what’s going on in our life at the time by doing things such as self talk like ‘get over it’ or ‘just be grateful’. Maybe that’s why we endure those relationships for far longer then we ever should’ve allowed, wallow in guilt or pity towards others, staying bound to their ways, or stay in our own hellhole of a prison, induced by depression and self hate for years beyond what was needed. Maybe by just owning it and feeling every terrible aspect of it, we’d be able to move through it faster.

Now, 8 years after her death and 7 post separation, I’ve had to relive every dirty and sickening detail of both. And each time they’ve resurfaced, they’ve come back at a greater intensity because of it. So, maybe you should scream into your pillow when you need too, cry in the middle of the store because you thought for a split second you seen a glimpse of them, laugh because that song that just came on triggered a memory. Maybe there isn’t an answer for everything, maybe we need to feel it for what it is because it’s our story. Maybe the constant comparison is doing nothing but driving us all deeper into a state of hell and oblivion. Maybe instead of thinking we’re entitled to all the material things around us, we should realize we’re entitled to our emotions surrounding our circumstances. Maybe then there’d be less holes in the walls or terrible things said and done, maybe there’d be less depressive states, less cheating, less hate and anger. Maybe if we’d just allow ourselves to act or react at the time that the actual emotion occurs instead of telling ourselves how ridiculous we’ll look crying for no reason, or screaming in our car at a red light is taboo, the only ones we’re hurting is ourselves.

Healing comes from within, and it comes from no one but ourselves. Maybe when we just being a little truer to our emotions as they arise, truer to our journey and hardships as they cross our paths, maybe we can move forward – for real. It’s OK if you feel like your world is falling apart on account of a break-up, or that you won’t survive if you loose your parent to a disease, or that you can’t possibly face another soul in public after an embarrassing charade at the local saloon or that you’ll be a let down if you lose your job. It’s OK because I know what all of them feel like.

 When you look at the grand scheme of things – it’s terrible right then and there, but then again, it was terrible in 9th grade when the opposite sex turned you down. It was terrible when you rolled your car in your driveway (oh wait, maybe I’m the only one that’s ever done that ahahahaaa) It was terrible to get the rejection letter to your college of choice or first pick job. many have been terrible in your life, and at the time, they needed to be and were warranted for their own reasons, but you survived them too. Maybe the trick to surviving has more to do with being OK that things are shit right then, and less to do with comparing our story to the next persons. Maybe while saying our ‘gratefuls’ we can also curse and cry about the things that aren’t so great. Either way, it’s worth a try to allow yourself to feel every corner of grief, of loss, of the unknown, of being scared shitless, of anger, rage hate, fear, sadness and love all at once! (Yep, there are days it happens just like that – one big ball of ‘holy shit – I’m laughing through my tears while punching my pillow! As different and unique as all of our stories are in so many ways, maybe our reactions behind them aren’t as crazy as they may seem, or not to the extent that we feed ourselves anyways.

Continue reading Blind Faith

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Gluttony and Starvation

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Let’s just go back and unravel a few things that related to the last entry. Due to the response I got on it, it clearly hit home to many.

I named this gluttony and starvation because on so many levels that was my life – overindulging while starving myself simultaneously. Seems a bit insane, right? If I wasn’t drowning myself in booze and partying I was starving myself from food, if I was overeating I was withdrawing from my social life (damn scale and jeans that keep shrinking ;). It seemed there really wasn’t a time I wasn’t doing one and/or the other, and certainly no balance between the 2!

I’m willing to bet there are few that can’t apply this to their life as well . Whether it’s short or long term, we’ve all been in those shitty funks! It’s those plumets rock bottom that get devoured by the guilt and shame. The thoughts and feelings of being so abnormal because you can’t be the person you once were. Then the expectation related to those thoughts and feelings, both by yourself and others around you. On a totally unconscious level we bury them as deep as we can, whether it be booze, nose candy, smoking, sex, working out or food.  Then there’s the other end of the spectrum, starving and depriving ourselves, from food, healthy relationships, fun, from a job we might actually like or are passionate about. It wasn’t just physical either,  to say I was emotionally unbalanced was an understatement! But, then again, emotions are triggered by mental thoughts. If I wasn’t overly judgemental I was excessively sad or angry. If I wasn’t sad I was on a high that followed a terrible crash.

I always thought that I didn’t deserve it, that I was less then it, that until I could change my demeanor, weight, looks or attitude, I didn’t deserve all, or any goodness in my life. “It” is referring to whatever it was outside of me that I wanted.

I always justified how I didn’t deserve it or wasn’t good enough for ‘it’ or ‘them’. And, there were plenty of things outside of me that reiterated that as well. I mean has anyone looked at a magazine cover – and then tried to look in the mirror?! Pffff, kudos to all of you who can accept every single aspect of yourself! I mean, really – KUDOS! (Please tell me your secret!) Can you can love every piece of the extra 10 pounds you carry? The cellulite, the wrinkles, the stretch marks? Can you appreciate yourself inside out, good with the bad and your journey – without having a laundering list of things you had to sacrifice to get it? I couldn’t and it’s still a HUGE daily struggle for me!

I was always in competition when in it came to relationships too, whether it be with the bottle or other women, fearful of which would ‘win’ next. So after awhile I subconsciously began to like that game because it’s what I knew. So again, I starved myself from freedom, from relationships where I didn’t have to feel I needed to compete or fight or be controlled and over indulged in what I had become to know. I stayed on account of obligation, whether it be a social event we had coming up, or a trip or the way others guilted me into it, I always stayed far longer then I should’ve. And when a decent relationship actually did surface, I had no idea what to do with it! I didn’t know how to get along, how to not feel insecure, how not to be jealous or untrusting. It was a foreign language to me.

On a gut level, I always knew what was right. Always. There are few times I can’t recall exactly having those thoughts and feelings and talking myself right back into the vicious cycle! I’ve always had killer intuition, but not necessarily one that I’ve acted upon. Instead, I hated myself more! I hated myself for that slice of pizza, that piece of cake, one drink that followed the next. Then there’s the guilt that follows the choice that follows the result. The number on the scale because I ate it, the hangover because I drank it, the embarrasement because I said or did it, the guilt for not allowing the good to stay in my life. Just keep it coming! But hey, misery needs company too, right?!
And just like with all lies in life, I really started to believe all of it, down to the core.

So, for all of you that can relate to at least some aspect of this – you aren’t alone – not even a little bit. And I’m far from beyond it! I’m still learning how to work through it, how to remove myself from the places, people and things I don’t like about my life that I feel are adding to my already heavy baggage. And it isn’t all outside of me, alot of it is taking control of my own thoughts, acknowledging these things have been brewing and trying to peel away what seems like an unending amount of layers!

For all who contacted me on the last entry, thank you. It’s helpful to have feedback, and as happy as I was for it, I’m sorry so many can relate to these valleys. But, I guess talking and being open is the first step to awareness, and to healing. Funny how clearing the white elephant in the room makes that baggage seem alot lighter, eh?! 🙂

Continue reading Rear view mirror

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Gutted

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Let yourself... quote cheryl strayed

That’s what I felt like after writing the last post – gutted. And it’s really only the beginning of the story…the details. Isn’t it funny how things in your head play out so differently then they do when they’re in front of you? I’m realizing I didn’t take into consideration that I need to have a starting point. I realized I was going to have to go back to uncharted waters prior to 2007. What life was like then – the ‘pre-Josie’ era. That one word, “gutted”, summed it up perfectly, as it’s exactly how I felt.

I don’t know how many more times I can be told, ‘everything is always in perfect timing. Every time you want to move forward with your life, every time you want to shed a layer, be ready for what will follow. Be ready for the hurricane of emotions, thoughts and feelings to arise. The ones that you probably didn’t know you had. Be ready for the rawness of every cell in your body to be stripped. Be ready for things to surface that you didn’t know you needed to address. And once it does, and you allow it to enter you and feel it through, KEEP GOING. Keep peeling away the layers, ripping off the bandages, but know that there will be 10 more to follow. Allow yourself to be vulnerable. Allow yourself to take off the armor, put down the shield and just open yourself up to the things you’ve forced yourself to bury and hide from. Because for as much as you want to help others, you’re being forced to help yourself more. As many times as I need that reminder, it’s still hard to comprehend when the going gets tough.

When I think back to all the coulda, shoulda, wouldas – I think to myself – ‘self’ (ha) imagine if everyone had this opportunity? Imagine if everyone started doing and saying and better expressing their raw, and true emotions? What if people were more accepting and respectful of those that did? I don’t mean out of anger, sarcasm, hate or pain – but just out love and letting it all go? A true, heart to heart and face to face conversation of where their story began, starting with the details of their childhood. Whether it be with another person, a mirror, or a journal? What a lighter load it’d be to carry if we all had the opportunity to release the pent up things we’ve held for so long, even if they are painful to say out loud? And even if the other person wasn’t accepting of it, what if we could just feel better for releasing it?

When I think back to Josie – I think of all of the things she internalized – for all the times we’ve said ‘if we had been more _____’ Well, maybe we still can be – maybe that’s where we need to start – just by putting down the armor and shield in constant defense of what might come next. Who might piss us off or offend us, who might hurt us, who might annoy us, or be a nuisance next. Or, who we may upset on some level, the fear of never wanting to rock the boat, but knowing deep down in our soul it’s apart of you. For all of the feedback I’ve gotten thus far – I invite you all to keep that in mind…as I continue to peel back the layers of my story – I invite you to do the same in yours. Think about how you can relate, or why you relate, or perhaps you can simply relate a little easier to someone else. It is the beginning of any healing revolution – allowing yourself to be gutted – instead of being worried about what the person next to you may say, or your spouse may think of you – maybe facing your own story from the beginning is the start of something painful – but also something so liberating! 

Continue reading Heaviest of Baggage

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